EEG testing

Well, Aly is feeling fine but continues to have the jaw locks and has had a few more episodes where muscles in her face tighten up and her eyes close.  She is unable to control it.  She had an episode today, while in gym class at school.  She felt her eyes starting to twitch so she stopped what she was doing and headed to the nurse.  Her eyes closed and her face tightened and she said her chin felt numb.  These episodes are sporadic.  It is frightening to Aly, because it is something her body is doing that she cannot control.  She was upset today and talked with the nurse and the school counselor after it happened.  She wanted to come home early so I went and picked her up.  I can only imagine what it would be like to be aware that something is happening and not being able to do anything about it.  
She'll go days without them happening, but she's now had 2 this week.  The doctors are stumped.  They still feel it may be a side affect from the radiation, but it is unclear.  Aly's cancer doctor talked with a neurologist and they want to do an EEG test just to see if that may help give some answers.  It was just scheduled today, for tomorrow morning at Children's in St. Paul.  With this test, Aly has to be sleep deprived.  For some reason, with this test, they feel there is a better chance to catch one of these episodes if there is a lack of sleep.  So, we have to keep Aly awake until midnight tonight and then let her sleep for about 4 hours and wake her up.  I'm really looking forward to rush hour on 4 hours of sleep!  Look out St. Paul, here I come!
I tried to help calm Aly's nerves.  Oh, that is a bad play on words... She's got to remember all she's been through and the fact that she had surgery on her brain and the chemo and radiation (POISON) that have also been aimed at her brain, I'm sure has something to do with this.  The nerves in her brain had to have been affected in one way or another.  I just hope they find some answers.  It is really frustrating to tell Aly there is nothing that can be done at this point.  Please continue to keep Aly in your prayers.  

On a side note...Aly's hair is growing back in!  She looks like she's got old man's syndrome with a large round patch on the top of her head that is still bald.  It is slowly filling in, but that is where the radiation dose entered her head, so that will be the last to grow.  The hair that is growing is REALLY dark!  Like almost black, dark.  It is much darker than when it started to grow back after chemo and before radiation.  It will be interesting to see if it stays that way or gets lighter as it grows.  Aly said she wants her blonde back!