Busy week!

Aly is doing good. She hasn't had one of her face episodes for a while. She continues to have jaw locks, at least one a day, but that is less than before.
Today, Aly met with the district's special education vision expert. She is going to start working with Aly through the end of the year. Today she took measurements so they can get a white cane for Aly. Aly has decided she needs to use one. It was hard to make that decision, but it is in Aly's best interest. She continues to occasionally run into things and it should help her navigate through the busy halls and other busy public places. They are also teaching her to use a word processor. Our last encounter with the neurologist brought up the fact that Aly has trouble writing when she starts to get tired. Hopefully, these tools will help her gain more independence.
Tomorrow, Valley Pools is coming to inspect our yard so we can proceed with Aly's Make a Wish wish. Yes, we will soon have an above ground pool in our yard! Aly is excited.
Wednesday, we have 2 great activities planned. First, for those of you not on Facebook, Aly was chosen as one of the STMA Middle School East's Students of the Month! She was so happy! She was beaming! We were thrilled and proud! She gets to attend a breakfast on Wednesday morning. Wednesday night, we have tickets to see Cirque Du Soliel's Michael Jackson show, courtesy of Make a Wish. We are looking forward to a long overdue family evening.

We are also trying to come up with something fun for Aly's birthday and are planning Tom's grad party. I just received his announcements in the mail. It is becoming a reality, ready or not!

We continue to ask for your prayers for all kids suffering from cancer. We heard news today, that another 5th grader was just diagnosed with a brain tumor at Aly's school! Please continue to pray that a cure will be found soon! Knowing what we've been through it is hard to hear about other families just starting a journey that no one should have to go through!