May Day

Happy May Day!  Just a reminder, May is Brain Cancer Awareness month, along with MN fishing opener, Mother's Day month, etc... We purchased some t-shirts for brain cancer awareness and Aly chose to get one that says, "brain cancer survivor."  Aly is doing great.  She continues to progress back to the Aly we used to know.  Our neighbors have been saying how great it is to see Aly back running around the neighborhood with her friends. Aly is going full force during swim team practices and is now making it through the full practices.  She is planning to attend her first swim meet next weekend!
As you can see by the pics, the pool is just about complete.  A couple of city workers (one was a fireman) came out and hooked up a fire hose to the hydrant, nearby, to complete the fill.  We had our hose in there and it ran from early morning until 7pm.  It didn't even fill it half way!  After these pics, they came out and installed fencing that goes along the top of the pool that will meet city code until we can tackle putting a deck up around the pool.  Of course, now that the pool is usable, the weather is miserable.  It is supposed to rain most of this week!  BOO...
I don't think I posted since the MRI, but Aly is happy that she could discontinue on of the meds she was taking.  It was phosphorus.  They were 2 huge pills, twice a day, so she is thrilled.  She is currently down to taking 3 medications a day.  Aly's cancer doctor gave us the go ahead to start the growth hormones, so we have to talk with the Endocrine doctor to see when we can start that.  Aly really wants to get growing!   Even if it means a shot everyday.  I wish there was some other way they could administer those!  It sounds like she will have to do these for a VERY long time.  When she gets a little older she will also have to start on estrogen replacements as well.  This will be interesting.  I just hope it goes smoothly.
Knock on wood...she hasn't had any of her facial spasms for a long time now.  She is still having her jaw lock up but that too is still decreasing.  YEAH!  The doctor said we may never know what really caused them, but as long as they go away we are ok with that.
That's what's happening here...