Things, as in phone calls and appointments, seem to finally be slowing down. We have found, what seems to be, a good physical therapist at Sister Kinney and they have an office, right close, in Albertville! SCORE! Other things going on:
- Aly had her last swim team practice of the season. It will start again in April.
- Aly starts yoga class, on Thursdays, as part of a clinical study of cancer kids, to see if yoga helps kids recovering from cancer regain their strength and flexibility. Of course, it means a drive to Minneapolis every Thursday night, but I'm hoping she will meet and get to know some other kids recovering from cancer.
- Aly is taking guitar lessons on Tuesday evenings. I'm hoping this may help with her dexterity, and she's been wanting to get back to learning guitar. She had just started lessons when the cancer diagnosis came at us.
- The Botox is not helping the jaw locks. She is still having them a few times a day and also while exercising still. They want to continue to increase the Botox dosage, but Aly doesn't want to. I don't blame her, it is not helping and each time means going to the hospital, sniffing nitrous (laughing gas) and being poked in the face with a needle. She doesn't remember the pain due to the gas, but it is still not a fun experience. They still can't come up with what exactly is causing them. I wish they'd just go away, the same way the started!
- Aly meets with the Endocrine (hormone) doc on Tuesday. Just a check in to see how she's doing on height and weight to determine if the growth hormones are doing what they are supposed to.
- This weekend's snow brought the kids out to play. It was nice to see Aly out enjoying the snow with the girls. It's been a while! Everyone is so busy during the winter or hibernating from the cold. It was a rather warm snow fall, perfect for snowmen and snow forts!
- Aly is looking forward to having a birthday sleepover at a friend's tomorrow. She is supposed to dress up like she's going to prom and also bring another outfit of her choice (she chose rock star). Sounds like fun to me! She also had a play date last weekend, so things are looking up!
That's about it from here! Hope you all are doing good!
Cute picture! My girls had a blast! Daisy only has soccer on Friday's and Saturday's until April...so is free most nights! The girls will have to get together some more...
ReplyDeleteThanks for the update...hope to see you soon (neighbor).
Hi,
ReplyDeleteI have a quick question about your blog, would you mind emailing me when you get a chance?
Thanks,
Cameron
cameronvsj(at)gmail.com