Hot, Hot, HOT!

Oh my, for those of you not in Minnesota, it was 95 today!  We just can't get a happy medium here.  It is either upper 60's and rainy or upper 90's and humid!
Aly is still holding her own.  Today Kevin left work early so we could get out on the lake and cool down.  Aly was sooo excited.  She's been wanting to go tubing.  Yes, she was feeling good enough to do that.  Her energy level is still up and down.  Mornings still tend to be a struggle.  She has been starting each morning still vomiting.  By lunch time she tends to have a bit of an appetite and eats a little.  Today, she surprised us all by pretty much eating a full meal at dinner time.  She had most of a subway sandwich with some apples and a juice box.  As Kevin said, that's more than she's eaten all week.  We haven't seen that in quite a while!
Tomorrow, we have a clinic visit.  They are doing an ultrasound just to rule out any stomach issues.  They will also being checking her blood counts.  We are hoping it will not take all day.  We were supposed to meet with a neurosurgeon as well.  His office called, as we were eating dinner, to see if we could reschedule.  We were hoping to get everything done in one drive to Minneapolis.  It never works that way. We shouldn't be surprised anymore!  There is never any concern about our time.  Our time is not as valuable as theirs.  They rule the world.  We just go broke paying medical premiums that pad their pockets.  That is the conclusion I've come to.  Oh, I've got a great story that I didn't share, from our last trip to the E.R.  The E.R. doctor figured out that our last name of Juntunen was Finnish.  To make a long story short, she said she recognizes Finnish names because she's had a couple of "au pairs from Finland"and most Finnish names end in nen.  Who calls nannies, au pairs and who hires them from Finland?  And do you really think we were interested in this story at 4 am when our daughter is laying in the E.R. and none of us has had any sleep?   Ok, I'll get back off the soap box.  Anybody want to back my campaign for president in 2012?  
We are meeting with the neurosurgeon just in case Aly needs to have surgery.  We do not know yet and a decision won't be made until they look at the MRI after her last chemo round.  They would just like to see Aly and start a plan if it is necessary.  It will just be next Wednesday instead of tomorrow.  Which means more time off from work and more long drives to Minneapolis...Yes, I'm hot, hot, hot...hot tempered.