Well, the doctor said it would take 3-5 days for the botox to start working. On day 4, Aly went through the day without a single jaw lock. She was thrilled. She had activity night at school so she didn't have a chance to tell Kevin the news before she left for that. She told me to, "make sure you tell Dad I didn't have ANY jaw locks today. I even ate one of those caramels and it didn't do anything." She said she hadn't felt anything in the jaw area. Usually she gets a tight feeling or it just locks, but this day nothing!
However, yesterday she had a jaw lock and just the one. I was doing some cleaning and Aly came in and said, "Mom, my jaw just locked." Oh, you could read the disappointment all over her face. She was ready to cry. I didn't really say anything as I was right in the middle of my cleaning project. I should've stopped and said something or give her a hug. She left the room for a little while. Then she came back and sat on our bed. Kevin was in the room and I was in the adjoining bathroom, still cleaning. I heard Kevin ask her why she looked so upset. She started to explain how she "went through the botox for nothing." Kevin and I both said she has seen improvements and I reminded her that it was day 5 and the doctor said 3-5 days. I encouraged her and said that even an improvement, being less jaw locks, should be worth it. I hope this works. I hope she has more days like she did on Friday, with NO jaw locks. Sometimes I feel like I am giving false hope, or trying to convince myself that these things will work. I hate these disappointments as much as Aly does. I wish a long string of positives would start happening for her!
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