Wow, well...as usual I'm struggling to find time to get on my blog. Seems like I'm at work, coming home and getting on the phone, then it is dinner prep, then evening activities! Everyday, I feel like I am still making calls in regards to something about Aly. Doctors, school, whatever it is, one call typically turns into 2 or 3. Never an easy answer, never an immediate yes. I wonder if this is what it will be like always, or if at some point some things will change???
Today, Aly headed on a 3 day school field trip to Long Lake Conservation Center. Tom had the same trip when he was in 6th grade. It must be a good one or I don't think they'd continue to do it. I'm worried that Aly will be ok out in the woods. I wish I didn't have to worry, but one thing could lead to another and yep, I just worry. They return on Friday afternoon. At least winter has held off for these days. It is supposed to be in the 50's for the next couple of days and Saturday may be even warmer, but I just heard that thunderstorms are coming Saturday which may turn our weather to snow on Sunday. Just gotta love Minnesota and the roller coaster weather.
I will admit I am taking full advantage of being kid free for the next couple of days. I'm getting caught up on Jayne time. Today, it was a mammogram and haircut. Tomorrow, maybe some shopping or something fun. Tonight, it is dinner out with my hubby.
Next week, on the 17th, will be the anniversary of Aly's first CLEAR MRI and the lumber puncture which showed no cancer in her system! I'll have to come up with something special I think! I just scheduled Aly's next MRI for December 4th. If this is clear, she will only have to go through 2 MRI's next year! Maybe that will help slow a few things down!
The jaw locks continue. Aly is still having several everyday, although she did not have any during her last swim practice on Monday. So, maybe the Botox is working to a certain degree, but not totally. The doctor's suggestion is to wait a couple of months and then try again with a stronger dose. I am still waiting to hear the opinion of the neurologist. She is the one who suggested the Botox. We'll wait and make a decision until then. We also got the neuro. pscyh. report we've been waiting for since the end of July. We were expecting pretty normal results as the doctor said about that much as we were leaving the appointment, but one interesting thing did come out of it. The treatments have caused dexterity issues. Aly's finger dexterity has been "significantly impaired." I'm not sure why this is or what part of the treatment would cause this, or if the tumor itself was the cause and like everything else, I'm not sure I'd get an answer from anyone. It is just another issue to tackle. The doctor suggested we include that in Aly's education plan, so she is not marked down, in grades, for slowness. She said it would affect things such as typing skills and playing an instrument. Aly plays the flute. She actually has been struggling a bit, especially on faster songs. It has been a point of frustration for her, and to have an actual reason why is actually a relief in a way. I told Aly about this finding and she was actually happy to hear it. She knows, now, that there is a reason for the struggle but at the same time, it is something else that she has to put extra effort and practice into if she wants to continue.
I just keep praying that somehow things will get easier for her....
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