4/19

Had to think about the date there!  These days are melting together, so much to do.  I told Aly, the other day, that she was now high maintenance.  She said, "whatever that means."

Aly has been having some great days at home.  Feeling great and she is eating! and eating a lot!  She has spent time with friends and her teacher, Mrs. Woods, has come by to help Aly with some school work.  If it continues to go well these next couple of days, Aly would like to spend a few hours at school on Thursday, before she needs to return to the hospital on Friday.  She is scheduled for her next round of chemotherapy.  She is supposed to be in the hospital for 5 days this time.  Hopefully, it will go much smoother and it will only require those 5 days this time!

Aly had a clinic appointment today.  It went very well!  She weighed in at 60 lbs.  Which means, she doesn't need to be hooked up to her feeding machine 24/7 (at least for now).  She has been eating up a storm the past couple of days and if she continues, we will only need to supplement her meals.  Their goal is to make sure she is getting 2000 calories a day!  We were also able to discontinue one medication that we were having to do every 8 hours.  So, without that med., and not needing to be hooked up to a feeding machine, which liked to malfunction and beep in the early a.m. hours, maybe we will be able to get a full night of sleep for a change!  

We are thrilled to have some good news today!  Hope you are all doing well.  Thank you for your continued support and well wishes...