Aly is improving today but is still on the ventilator and still asleep. However, somehow she is fighting her way to consciousness. Kevin spent the night last night and was here this morning. He said there were several occasions where Aly opened her eyes and wanted to communicate. They gave her a clipboard with paper and a pen. She wrote, "when did I" then fell back asleep. Later, she wrote, "why do I have a tube in my mouth." The nurse then explained why, and then Aly wrote, "when do I get it out". At that point, the nurse went out to the doctor and told him the dose needs to be increased because she is so coherent. Another time she wrote letters in the air with her fingers and Kevin then guessed the word and she would nod her head for yes or no. My mom was with her this morning and she said Aly motioned with her hand like she was tipping a glass because she wanted water. Since I've been here this evening she's aroused once. Her eyes seem unfocused yet she responds to voices and wants to communicate. It is a little eerie yet amazing at the same time.
Her lungs are improving (clearing) which seems to confirm the diagnosis that it was a reaction to the blood she was given. They say if it was an illness or something else the lungs wouldn't be improving so quick. At this point their plan is to wean her off the ventilator sometime tomorrow. Another chest x-ray is scheduled for the morning. They have also restarted her chemotherapy doses this evening.
Through this we did receive some positive news. They did some blood tests to check the progress of the chemotherapy. There are tumor markers in the blood cells when cancer is present in the body. Aly's marker level is lower than when she first started treatments which normally means the treatment is doing its job.
Aly just keeps proving to us that she is a fighter. She is amazing.
Aly you are amazing little girl. Your strength amazes me! You remind me everyday what is important, You truely are an inspiration to me! We are praying for you and think of you all the time. When you are feeling better, my girls would love to see you. They ask me everyday how you are doing. We love you!
ReplyDeleteSheila
Aly
ReplyDeleteim praying that you get better and i miss you at news crew. we are all pulling for you. you're very brave. keep fighting I'll write again.
kylie kiecker
Kevin & Jayne-
ReplyDeleteWow! Your daughter is such a fighter & so strong! What a wonderful example your family is to all of us. To say that your family is an inspiration is such an understatement. We will continue to keep your family and the doctors in our prayers. You are never far from our thoughts.
Scott & Tracey Morris
A.MAZ.ING!!!!
ReplyDeleteAs I just read the last couple of posts I can't help but wonder the amazing plans God has in store for Aly!!! Will God use this experience with Aly so that she can help other kids in the future? All of the one in a million instances that have happened with Aly's care...yes, I would say God has a might plan and He knows exactly what He is doing...and He is holding her and all of you very, very close.
Prayers continue in our home for you and with my girls as they pray at school everyday. One of my girls shared Aly's story with her entire class at school and they offered prayers for her.
Many prayers coming your way today to get the vent out...
Cindy Rohr
You are so strong Aly, keep fighting! We think of you everyday and can't wait for you to come home so Natalie can come over and hang out with you! Stay strong girl!!
ReplyDeleteLaVonne, Chris, Kyle and Natalie Engman
There are many of us here at NAP that are praying for your courageous daughter!
ReplyDelete