challenges

We continue to try to maintain some sense of a normal schedule, but it is near impossible!  I took a turn staying at the hospital last night, then came home around 5 pm, just in time to eat a quick bite and drive on to Tom's hockey game.  Kevin worked this morning and then relieved me at the hospital and he is staying there tonight.  I don't know how long we can continue this.  My folks are staying with us and they have been a great help, but Kevin and I really feel one of us needs to be with Aly and to keep in constant contact with the doctors/nurses caring for her.  The worst of it all is Aly still remains in the hospital.  She continues to be a "rare" case.  Every time they give her a new dose of something, they tell us the rare side effects and guess who gets those rare side effects??  Today, Aly received a medication that is supposed to stimulate new cell growth, to speed up the recovery process.  One of the "rare" side effects is bone pain (your body's blood cells are grown in your bone marrow).  Well, Aly woke up at 2 am this morning, in such pain, she couldn't stand it.  They gave her morphine.  She slept well for a while until about 6 am, then the pain started again.  Another dose of morphine.  At first we thought it was due to lack of movement as she has been isolated in her room for 2 days with Influenza B.  A physical therapist came in and did some exercises with her today and then a massage therapist came.  It seemed to help for a little while and she drifted off to sleep, but now this evening she is in severe pain again.  We are at a loss.  I don't understand why everything is affecting her so severely.  I can't imagine going through what she has gone through in these, now going on 13 days, in the hospital.  Please pray for Aly to maintain her strength and for the doctors to figure out the best course of action with the least complications!